New site for teens who had eye cancer

Olivia Deane – a model and influencer who had retinoblastoma

A website www.chect-tya.co.uk for teens and young adults who have had a rare eye cancer has been created by the Childhood Eye Cancer Trust (CHECT). Retinoblastoma (Rb) typically affects children under the age of six. 

Chief executive Richard Ashton said, “The site has tonnes of relevant features including real life stories and interviews with teenagers and young adults who have had Rb. This includes an interview with rugby star Will Jubb, a makeup tutorial for people who have prosthetic eyes by influencer and actress Kelsey Ellison, and a video about learning to love yourself when you have a ‘difference’ by model Olivia Deane, who has recently modelled for Primark.”

“The website also includes guidance on a variety of issues that may affect teenagers and young adults who have had Rb, such as advice on learning to drive and guidance on transitioning to secondary school, college or university.”

Richard added: “We are delighted to add the website to our existing support services, as it is important that teens and young people not only have a voice but a channel that is specifically for them. We are also proud to announce the launch of our first TikTok channel – where we hope to raise further awareness of issues relating to living with sight loss and the signs and symptoms of Rb.”

Typical signs of retinoblastoma include a white glow which may only appear in certain lights or a squint, as well as a change in the appearance of the eye or a swollen eye. Often only one sign or symptom is present.  Health care practitioners are encouraged to perform a red reflex test if they spot a sign or symptom of retinoblastoma and make an urgent referral.

CHECT provides grants to help alleviate financial hardships, as well as support workers and virtual and face to face events across the country. The Clive Richards Foundation is doubling all donations received up to £20,000 from 25 November to 31 December. To learn more, contact fundraising@chect.org.uk or visit www.chect.org.uk